This video shows an eye with Terrien’s Marginal Degeneration. This is when the cornea thins at the edges toward the limbus. The etiology of this condition is not understood, but classically these eyes present with a band of thinning with a step-off toward the center. Also, you can see white lipid deposit, vessels growing into the area.
In this video you can see the area of thinning at the limbus. You can also see the sloping central edge that spares the limbus. This eye has no injection and the patient was without complaints.
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I suffer from Terrian’s Marginal Degeneration I am a 27 year old Female. who has suffered from this condition from the age of 21, not knowing much about this condition I as doctors are telling me very little I would really like more info sent out to me. I am a 1 in a billion case so I am told, and I also Have scleritis in the eye aswell. I found this page informative. Please contact me if you would like more info.
Comment by Janelle Harvey — October 28, 2007 @ 11:09 am
hello there,
my name is vijay and i too is suffering from b/l terreiens marginal degeneration for past four years. spectacles dont work for me since i have very large degree of astigmatism. rigid contact lens are too painful to wear. now i am with boston scleral lens giving me good vision but my outdoor activities are limited.
is there any known treatment for this disorder. i ve told by a famous corneal surgeon from singapore professor tan that they have advanced surgical techniques to treat this disorder to retain good vision and make the cornea stronger.
if you have any opinion and suggestions please reply my mail. regards , vijay
Comment by vijay p. shrestha — January 9, 2008 @ 10:53 am
I AM FEMALE 33 YEARS OLD AND THE DOCTOR TOLD ME THAT I HAVE TERRIEN“S MARGINAL DEGENERATION. AT THIS MOMENT I DONT HAVE ANY VISION PROBLEMS BECAUSE I AM IN THE BEGGINING OF THE DISEASE BUT I AM VERY NERVOUS AND I FEEL DEPRESSED. I AM SCARED OF MY FUTURE, I DONT KNOW IF I COULD BE BLIND. ALSO I HAVE VERY LARGE MYOPIC SINCE I AM TEENARGER.
ana,
i ve been diagnosed with terriens marginal degeneration for last five years. initially the astigmatism wasn very bad but since it gradually progressed my vision can no longer be corrected with spectacles. i have a astigmatism of 8.00 diaptors which is very extreme.
rigid lens give good vision but it is very irritating and painful and falls off. now i am with boston scleral lens, it is giving me good vision but maintaining caring is a difficult job. also, the city where i live is very dusty and polluted and my eyes get tired and red even with the scleral lens.
yes, you are right i am thinking about the lamellar keratoplasty. i want to try this on my right eye first. at singapore they suggested annualr lamellar keratoplasty for my condition. do you have any further informations regarding lamellar grafts. you can send me emails at vijaymi6@hotmail.com or call me at +977- 9851013932 thanks.
I was finally diagnosed with Terrian’s about three years ago, but symptoms were first noticed when I was thirteen. It can be a very slow moving disorder, it is also hereditary. Because it is so rare a disease there are not many specialist or knowledge about the disease. From what I’ve been told, regular contacts are not an option. They can speed up the progession of the disease. The best that I have found is at University of Rochester Eye Institute, but from what I understand from their website you have to be referred to them.
Hi
I have been told by the doctor I have thinning of cornea.I’m 36 years old, I’m so worries I will lost my my vision oneday.I don’t know what to do.I so depressed……
Thank you
I’ve had Terrien’s Marginal Degeneration since 1981.I have seen many doctors over the years and to my dismay many of them are not knowledgable about the disease. However, recently my current doctor who actually named my disease (yeah!) informed me that probably with stem cell research going on,it was quite possible that in about 5 years they would be able to use my healthy corneal tissue and be able to duplicate it and have a corneal transplant. This gives me hope. Also, look at UC DAVIS EYE INSTITUTE they are pretty advanced with eye diseases.
I was diagnosed with Terrien’s and in October of 2009, I had a corneal transplant. 5 weeks ago, I was told that my transplant was in failure and that I would be needing another transplant. I also was told that having a second transplant may result in a higher rate of rejection and/or failure. My doctor was also just diagnosed with cancer and is now in treatment and so I have to continue my treatment with a new doctor. Fortunately, the new doctor that I will be seeing this Friday is the brother of my orginal doctor and will be consulting with him. My fingers are crossed.