This video is an English news interview about the first injections of for retinitis pigmentosa into a human subject at Moorfields. A review of litereature shows that Dr. Ali has been working on several mouse models of RP and vector delivery.
This pubmed link for more info on gene research. This link goes directly to an artical citation by Dr. Ali … to see his other articles, click on his name.
Last night I watched aprogram on Shroug TV (Sudanese)about a poor Sudanese family ,the father ,a poor carpenter supporting three male adults and their sister completely blind ,the fourth boy on his way to total blindness,they suffer from Retinitis pigmetosa ,NO HOPE they were told.The program director and the family are calling for help.Iam also calling for help to this family and my own three adult neices whose parents double first cousions inherited them RP and died without support ,Iam helping them besides supporting my family.I made a search and a glimpse of hope and light sparked through the darkness in which these poor people found themselves.I address Dr.Ali and all humanitarian bodies to help.God bless.thank you
Comment by Dr.Mohammed Zain — September 12, 2008 @ 7:59 am
Dear Sir
I would like to extend my congratulation to Dr Ali for his remarkable achievement in gene therapy.I am also an ophthalmologist and unfortunately recently diagnosed by ophthalmologist in USA as suffering from central cone dystrophy.I am very hopeful for my future after knowing the success of gene therapy.I want to offer myself for any treatment trial in UK or canada.If possible i would like to know as where to contact for this.
Comment by Ataur Rahman Khan — December 1, 2009 @ 3:44 pm
carissimo dottor Ali.
mi chiamo Luigi Polverino scrivo da Napoli ho mia moglie affetta da Retinite Pigmentosa in stato avanzato vorrei
sapere come e dove poterla curare .
Cordiali saluti e grazie
Comment by luigi polverino — January 26, 2010 @ 10:08 am
i am a sister of rp patient.she is suffering from childhoodplease help her in treatment .let me know whats required
I live in Philadelphia pa. I have to parents both diagnosed with RP. Both are legally blind. My father was born blind and my mother lost her sight by the age of 20. I have hope that one day my parents would see the faces of the children and grandchildren. If there is any way to sign up for trails we would be interested. janet_m08105@yahoo.com
Comment by Janet martinez — August 29, 2011 @ 9:45 pm
THERE HAS GOT TO BE A CURE FOR RP BY NOW WITH STEM CELL RESEARCH. MY BEST FRIEND IS ALMOST BLIND. IF THERE IS ANY KIND OF TREATMENT PLS LET ME KNOW ASAP.
THANK YOU SASSYS777@WOWWAY.COM
Hi i am a 38 year old east indian male from South Africa and am losing vision fast due to RP! please can someone offer some advice and hope??
a1pawnbrokers#gmsil.com
Comment by Subashan Naidu — September 27, 2011 @ 12:02 pm
Hello
We live in Russia. My brother and I have got a diagnosis primarypigmentary degeneration of retina since childhood. I am 24 years old, my brother is 19. The complete diagnosis is pigmented retinitis of both eyes,rotatory nystagmus, divergent concomitant strabismus of the right eye, hypermetropia of low degree, abiotrafiya mixed belotochechnoy of both eyes. Knowing about the types of inheritance of this disease, we have become familiar with our family tree, but nobody among our close relatives has such a disease. I get dedistroficheskay therapy twice a year. but there is no any effect. As far as we know, the research say that there is no effective treatment of this disease. Could you tell us, please, if your clinic can help us?
Sincerely,
Azat Sungatullin
