Terrien’s Marginal Degeneration (Photo)

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This photograph shows an eye suffering for Terrien’s Marginal degeneration. The peripheral cornea shows white lipid deposition with some vascularization. The cornea has opacified inferiorly with some thinning of the stromal bed that creates a gutter. This is more commonly seen superiorly, and some people might call this more of a gutter degeneration.

The etiology is unknown. As this is a 2D picture, it may be difficult to appreciate the thinning that i present at the 6 oclock position, other than that the limbus appears to be clearer (it’s easier to see the iris). To get a better view, watch our terrien’s degeneration video to see how the slit-lamp beam hi-lights the shelved gutter down below.


Comments and Feedback
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I have it and it is progressing quickly. The first year vision went from 20/20 to 20/60. That was 3yrs ago. I know I wont be driving much longer. Right now its like looking through wax paper.

Comment by Markk A Jensen — October 18, 2009 @ 4:39 am


I have had Terrien’s ulcer for over 22 years and this is the first time that I have ever found anything on the web. It has been a terribly painful and often times debilitating disorder. I too went from 20/15 to not being able to read the “E” at the top of the eye chart. I was hit directly in the eye with a racquetball when I was 16 and Dr. Arlo Terry was the first to definitively diagnose me after visiting nearly a dozen corneal specialists back in the late 80’s and early 90’s. I am interested in talking to others with Terrien’s ulcer, please email me at mikeg_mrclean@yahoo.com.

Comment by Mike Gardner — October 20, 2009 @ 10:55 am


my name is oterious,i am 12 years old yesterday on july 8th 2010
i found out i have terriens eye disease it is very painful my eye keeps leaking it is possible i can go blind i may not be able to play sports or go in the navy

i am the first kid to ever have this disease

Comment by oterious lewis — July 10, 2010 @ 2:37 am


after years of searching forinfo on terriens, finaly, i find this site.
originally informed that this conditon would have me blind by the age of 50-55 (which thankfully, has not yet happened),there has been a marked decrease in my vision. However, at 64 yrs of age, am still able to read with the use of bifocal eyeglasses.
can’t say that there has been a lot of pain associated with my terriens…although when younger, from time to time one or the other of my eyes would become very inflamed, sensitive to light and quite painful. this never ocurred in both eyes at the same time, but once, it hit my left eye, then moved to right eye when the left eye had been cleared up.
it was actually the inflamation of one eye after a weekend skiing trip at age 13which led to my original diagnosis. there was some thought at the time that skiing on a sunny day may have agravated the problem. have never known wether the skiing was the catalyst or not, but every time i skiied when the sun shined, the inflamation would return, which resulted in my giving up skiing.
my father was discovered to have this condition about 10 yrs after i was diagnosed, and one of my nephews was also diagnosed at about 14 yrs of age.
neither of my brother’s have shown any sign of the condition and since both are over 60 now, it would appear they don’t have it, but one brother carries the marker.
i’m female and 64 yrs of age, so have been dealing with terriens now for over 50 yrs.

Comment by maghaera — September 24, 2010 @ 7:20 pm


After being misdiagnosed several times as a child for the pain and inflammation I was experiencing frequently in my left eye, I was finally diagnosed with Terrien’s degeneration at the age of 11. I am now 18 and instead of having flare ups about every three weeks, I now have them maybe every three months and they are much less painful than they used to be. I was told I will need a cornea transplant around the age of 50.

Comment by Kaileigh O'Neill — April 3, 2011 @ 4:11 am


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